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Showing posts with label siblings. Show all posts
Showing posts with label siblings. Show all posts

Thursday, October 3, 2013

31 for 21 Challenge: Day Three. Never a Burden

"This baby will make life miserable for your other two boys."  "He will be a burden."  That's what someone told us upon hearing that we were choosing to keep Josiah (and his extra 21st chromosome).  

Studies indicate that siblings of individuals who have Down syndrome demonstrate higher levels of maturity, acceptance, wisdom, and empathy, as compared to their peers.  In short, they are better people :)

From the moment we told the older boys that we were expecting Josiah, they looked forward to meeting their partner in crime.  When I told them that Josiah had Down syndrome, it was of no consequence to them.  Josiah was their brother, and they were waiting to love him.

When Josiah was born, he was immediately accepted.

Josiah is just one of the boys.  He is loved and adored.  The older boys play with him, talk to him, include him, hug him, kiss him, and share their toys with him.  With their brother, the older boys demonstrate patience, humility, and grace.

Josiah belongs here.  He belongs with us.  He's one of us.

It would only have been miserable, if we had not had the opportunity to call Josiah ours.

We are truly blessed.

Wednesday, June 6, 2012

Dreamnight at the Zoo 2012

This year, we learned of an event called "Dreamnight at the Zoo."  We heard about it from a local group we belong to - a group of families all of whom have children with Down Syndrome.  It seemed like a nice idea for our little group of families.  I had no idea the scope, or meaning, of the event.

Dreamnight at the Zoo is a global event which strives to offer an annual, cost-free, evening at the zoo, for chronically ill & disabled children and their families.  It is, ideally, held on the first Friday of June, from 6pm-10pm (times vary slightly).

Each zoo organizes the event its own way but in all the zoos children are welcomed, and treated like VIP's.

Rotterdam Zoo (Netherlands) initiated an evening "at the zoo," for children at the Sophia Children's Hospital, in 1996.  This first event, was specifically for children with cancer.  175 children were invited, and brought parents/siblings. 

In 2000, the Amsterdam Zoo joined their effort. 

In 2002, Denmark & Belgium joined. 

In 2003, France & Canada joined in the effort. 

2004 welcomed Holland, UK, Greece, Czech Republic, US, Columbia, New Zealand, Hungary, and Sweden.  In each Country, additional zoos joined.

2005 welcomed more zoos.  In addition, Dreamnight welcomed Poland, South Africa, Australia, Ireland, Japan, Mexico, Taiwan, and Scotland.

In 2006, Switzerland, Portugal, India and Israel joined the team.

The list just keeps right on growing.......
Last Friday, we were fortunate enough to have been included in this year's Dreamnight.  We packed up the boys and headed to the zoo.  Our Dreamnight was scheduled from 5:30pm-8:30pm.

Upon arrival, we noticed the sign:

"The zoo is closed to the public.  This evening's event is by invitation only."

As we walked through the front door, we were quickly greeted by smiling faces.  They asked our names & verified that we were on the VIP list.  Each child was given VIP passes to wear around their necks - they were nice too - laminated cards with a beautiful picture of an elephant on the front, the letters VIP, all on a nice lanyard.  We were handed an envelope with our name on it.

As we passed into the zoo, we stopped to peer into our mystery envelope.  Inside, we found tickets for a free teddy bear (for each child), popcorn, ice cream, and snack bar dinner (one per person).  The carousel and train (which usually cost extra) were free as well - unlimited rides.

Well, we had a blast!!!!  It was three hours of bliss.  Josiah is young so he couldn't really understand what we were doing, but he loved being out with family.  His older brothers were elated.  It was less hectic, as it was only families (public was excluded).  It was a great time!  We saw some of our friends there (from the group we belong to).  We enjoyed seeing the other kids from our group.

We can't wait for next year.  Josiah will be older - he will have a blast!

Here's a cute pic of Josiah, just enjoying his night out with family.



You can't see it in the picture, but we were just as happy as he was :)


For more information on Dreamnight at the Zoo, or it's history, please visit:
http://www.dreamnightatthezoo.nl/English/index_EN.htm

Saturday, May 19, 2012

Stone Soup 051912

James woke up Monday morning with little red bumps around his lips.  Last Friday, he had exhibited a brief fever (only 99/100).  Over the weekend, he had seemed "off" at times, but I thought nothing of it.  That is, until I saw the bumps.  Off to the MD before visiting Nana for the day.  "Probable' Coxsackie Disease - what a name!  Apparently, it's very common with young kids.  Of all the weird things, it's actually a respiratory infection.  So, "keep him away from Josiah as best you can."  These were the words to live by for a few days.  We skipped both play groups this week, just to keep his germs away from others.  Whatever it was, it seems to be gone.  Coxsackie is "extremely contagious" and no one else has caught it.  So, I'm not convinced of the diagnosis.  None-the-less, we are happy that he is ok.

Jesse, too, had an exciting week....full of milestones.  He officially graduated from preschool.  We all went to celebrate his accomplishment.  He was very proud, as were we :)  Today, we dropped him off at a friend's house.  It was his first birthday party/sleepover.  He was delighted and couldn't wait to leave the house.  By 9:30am, he was asking "Is it time to go yet?"  1:00pm couldn't come fast enough.  It's 11pm now and, by all accounts, he's doing well at his friend's house.  We cannot believe what a big boy he has become.  This summer, he attends kids college.  Then, it's off to Kindergarten <3

It's been a nice week & we still have one more weekend day to enjoy :)