Yesterday, we took Josiah to the pediatrician for his first Synagis shot. He tolerated the shot well & had no adverse affects.
This morning, we received the anticipated call from Children's. Josiah will undergo open heart surgery next Wednesday, Jan 25th. Pre-op is scheduled for Tues.
Despite being anxious about the surgery, we are so pleased that the wait has lessened. 5 days....the countdown begins.
We've arranged for the boys to go to my parents house for the better part of next week. We are so thankful to them for all of their support. We are also thankful to the boys aunts/uncles who are always a constant support. And, as always, we're thankful for friends who are always willing to lend a listening ear, or words of encouragement. It truly does take a village.....
Welcome. I was inspired to write this blog while pregnant with my son, Josiah. At 18 weeks gestation, Josiah was diagnosed with Down Syndrome. He had open heart surgery at 3 months and has had RSV twice. He is now 21 months old. He and his two older brothers amaze us everyday. Josiah was not a mistake, nor is he a regret. He is a miracle and the light of our lives. We share with you this beautiful life we have been blessed with.
Friday, January 20, 2012
Synagis shot & Surgery scheduled
Labels:
Children's Hospital,
down syndrome,
DS,
OHS,
open heart surgery,
pediatrician,
synagis,
Trisomy 21
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Nothing communicates love or the worth of this boy than risking the shattering of your own heart to stop his...fix his...and provide him the long, healthy, productive life that he will mesmerize those around him with.
ReplyDeletePudge and Biggs will be rooting for him and we'll be praying for your heart during those emotional days ahead. xoxoxo
Thank you for your support, Pudge & Biggs :) I appreciate your kind words...they mean the world to me <3
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