We left the hospital at about 5pm, yesterday. Josiah seemed to know he was going home. As he was wheeled out in his stroller, he was fascinated looking around. In his car seat, he fell asleep quickly and slept until we reached home.
Jesse (the oldest) was watching out the window when we arrived home. We were met by both boys as we came up our staircase. The boys were happy to see Mama. They were happy to see their baby brother. I showed Jesse Josiah's 'zipper' (aka scar, as Daddy calls it).
Josiah ate well and fell asleep around 9pm. He proved happy to be home; he slept until 6am.
Josiah's voice seems stronger than ever. He is eating well; he even burps after feeds (something he never did before). He looks great.
We have to schedule another sedated echo cardiogram for later in the week, just to be sure the surgery 'stuck'. We have every reason to believe that it did :) In a week or so, we fill follow-up with the pediatrician. It was fun reading Josiah's discharge papers. They suggest a child who used to have heart disease (past tense). They suggest a child lacking a heart murmur (what a great thing!). Josiah's labs were perfect, all numbers falling within normal limits. They suggest a child with a history of failure to thrive (which we do not anticipate to be a continued problem). They suggest a child who's broken heart was made whole. What a miracle <3.
I had fun playing with the other boys last night. They were both pleased to have Mama sing and read to them before bed. Our night-time routine was back; normalcy had been returned.
The week continues as normal. James's EI worker will come to play with him this morning (something he greatly enjoys). Jesse's back to preschool (and pleased about it). We will take the younger boys to playgroup later in the week.
It's nice to be home. Everything just feels right :)
Welcome. I was inspired to write this blog while pregnant with my son, Josiah. At 18 weeks gestation, Josiah was diagnosed with Down Syndrome. He had open heart surgery at 3 months and has had RSV twice. He is now 21 months old. He and his two older brothers amaze us everyday. Josiah was not a mistake, nor is he a regret. He is a miracle and the light of our lives. We share with you this beautiful life we have been blessed with.
Monday, January 30, 2012
1st Morning at Home
Labels:
down syndrome,
DS,
echo cardiogram,
EI,
heart murmur,
home,
miracle,
OHS,
open heart surgery,
pediatrician,
sedated echo,
Trisomy 21
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