Welcome. I was inspired to write this blog while pregnant with my son, Josiah. At 18 weeks gestation, Josiah was diagnosed with Down Syndrome. He had open heart surgery at 3 months and has had RSV twice. He is now 21 months old. He and his two older brothers amaze us everyday. Josiah was not a mistake, nor is he a regret. He is a miracle and the light of our lives. We share with you this beautiful life we have been blessed with.
Sunday, September 15, 2019
When the Dust Settles
Sunday, November 15, 2015
Daddy's Gone
After being told that Carl was gone, life changed in an instant. First and foremost, I had to tell people. I informed Carl's brother who was already enroute to the hospital but now coming here. I called my Dad. I called my sister-in-law. I called the Elementary School. I was in disbelief, shock, and dismay.
At 10am, Carl's family had arrived at my house. Together, we headed to the hospital. My family met us there. A chaplain awaited our arrival. Carl's Mom, brother, sister-in-law, and I headed to Carl's room. The curtain was drawn across the room. In the end, I chose not to witness what lie behind it. The others did. Heeding their advice, I held strong to the last images of Carl that were deeply embedded in my brain. That was enough.
I returned to the waiting room. Carl's belongings were brought to me. His briefcase, a hospital bag, and his boots - the last items that he had touched, worn, and used. It was surreal. It was incomprehensible. It was over. My Love was gone, and life would never again be the same.
Everyone returned to the house. Josiah arrived home at 11. He was happy and blissfully unaware of the tragedy that had just taken place. He knew not to be sad. He knew not that he had just lost his Dada. He smiled, laughed, and gave reason for us to carry on.
At 3:05, the big bus arrived home. The boys immediately noticed that family cars were in the driveway. They asked why. They asked what was going on. I asked them in and sat them down on the big beanbag.
It is heartbreaking to know that you are delivering the worst possible news to your children. I remembered back to Saturday. After talking to the ICU MD, I told the boys that Daddy was sicker than he had ever been. I told them that Daddy was so sick, he might have to go to Heaven to be well. The hypothetical had now become reality. I reminded them of that earlier conversation. I then broke the news that Daddy, in fact, had gone to Heaven. In that moment, the world stood still. Nobody existed but my children and I. In a room full of people, I found silence.
The boys only reaction, in that moment, was of understanding. The anticipated tears and meltdowns were null and void. Soon after, they went on to play. My heart broke as I knew the reactions would surface. I didn't know when. I didn't know to what extent. Daddy was gone. When was that information going to sink in???
Sunday, January 19, 2014
Holidays and Happy New Year
Thanksgiving was beautifully spent with family.
Two days later, a little elf arrived at our house. This was to be our new family tradition. We read the book (the boys had already seen the tv special). The boys set out on their task of naming our little elf. Before long, the name "Stinky Chips" was chosen. Stinky Chips was a good little elf. He didn't get into much trouble and was only touched once by our oldest (age 6, at the time). An emergency intervention gave Stinky Chips back his magic and the rest of his time here was without incident.
Yes, Stinky Chips helped pass the time awaiting Santa's arrival. We did a lot (most) of our shopping online this year. Gifts simply arrived at our doorstep. We wrapped and labeled them. It just seemed the easiest thing to do. The oldest is in 1st grade, has almost-nightly homework, and karate 3x per week. The middle child is in 1/2 day preschool, and is a whirlwind of activity in his own right. Josiah has EI 2x per week, OT 2x per week, Speech 2x per week, and playgroup 1x per week. After adding in random doctor's appointments, errands, etc, there hardly seemed time to shop. Online shopping saved my sanity.
In the middle of Holiday preparations, we decided to plan a trip. My parents are going to Florida in 2014 and asked us to join them for a portion of the trip. So, after searching for the perfect price (which doesn't exist), we purchased airfare for us to fly to Florida. Disney is the destination. 2014 holds something fun to look forward to....
We managed to keep the upcoming trip a secret....until Christmas Eve. Then, we told the boys. They are excited as kids can be who have no idea what to expect. I am excited for them. They are going to love it.
For the third Christmas Eve, we celebrated at my parents home. We read the same story that has been read to my family since 1873. We opened gifts from those would not see the next day. We ate great food. Once the older traditions were complete, we wrote messages on balloons to Scott (my beloved brother), formed a circle on the back deck (each with a hand on the balloons), played "We'll meet again" (Inkspots), wished Scott a Merry Christmas in Heaven, and released the balloons.
The next day, we celebrated at our own home. It's always fun when the big boys run downstairs to tell us that Santa Claus has visited our house. We spent the day opening gifts, preparing (and eating) dinner, and visiting with family. It was a lovely day. Josiah was particularly fun this year. He's two. He's a fun age for a Christmas celebration.
Though I usually enjoy leaving my tree up, this year it only lasted a couple days into the new year. Beneath the branches, had become a 'dumping ground' for all the opened but yet-to-be-put-away gifts. Josiah had also become a master at pulling on those aforementioned branches. We had a dumping ground under a very tilted tree. Yes, it was time for the tree to go.
As the new year approached, one more test had been passed. We made it through the month of December without RSV. This is the first year Josiah has made it through the month of December without RSV and a resulting trip to Children's.
Happy New Year!!!