When Josiah was born, he failed his newborn hearing screen. We were sent for a follow up a few weeks later. Although he passed, he already demonstrated 'borderline normal/mild hearing loss.' It was explained that this is common in children with Down syndrome. In part, their particularly small ear canals can play a role.
Josiah has had audiology follow-ups locally, as well as at Children's. At Children's, the results are always 'inconclusive.' Locally, they tell us Josiah can hear, but not as well as other children his age. Simply put, his inner eardrum could hear at 0.3 & 0.5 levels. Listening to speech, he could hear sounds as quiet as 25 db (normal is 20 db or less). Hence, he is always labeled 'borderline normal/mild hearing loss.'
Three weeks ago, Josiah got tubes in his ears.
Today, we went locally for a audiology follow-up. His inner eardrum could hear at levels 1.3 & 1.6. The tubes have more-than-doubled his capacity to hear. While listening to speech, he could hear sounds as quiet as 10 db. The results were NORMAL!!! His hearing falls within normal limits!!!
We go to bed tonight, very grateful....as always :)
Welcome. I was inspired to write this blog while pregnant with my son, Josiah. At 18 weeks gestation, Josiah was diagnosed with Down Syndrome. He had open heart surgery at 3 months and has had RSV twice. He is now 21 months old. He and his two older brothers amaze us everyday. Josiah was not a mistake, nor is he a regret. He is a miracle and the light of our lives. We share with you this beautiful life we have been blessed with.
Showing posts with label ears. Show all posts
Showing posts with label ears. Show all posts
Wednesday, October 2, 2013
Saturday, June 9, 2012
Follow-up at the Pediatrician
Wow! OMG! Holy Canoli! That's all I can say :)
Friday morning, we headed to the pediatrician (Dr. W) to follow-up regarding Josiah's ears (he was found to have fluid in his ears on Thursday). The two year old was also due for an appointment, so we killed two birds with one stone.
Josiah was weighed upon arrival (the norm, at this point). He weighed in at 13 lbs 2 oz. The RN was pleased. I remained quietly anxious, as weight has been a struggle forever! When the Dr. W. came in, he asked about Josiah's weight. I cautiously answered. The pediatrician was HAPPY! I mean genuinely happy! He kept repeating, "I just can't get over Josiah's weight." "He looks amazing!" "He's doing great!" Dr. W. checked Josiah's ears - the fluid is minimal. There's nothing you can do for fluid in the ears, at this stage. So, we will check in with Dr. W. just before the next audiology appointment in Boston.
I joked with Dr. W. about how Josiah falls in the 10% percentile for weight and my 2 yr old falls in the 9% percentile for his weight. Dr. W. replied (regarding the 2 yr old), "He did. Now he falls in the 5th." I laughed. It goes to show that maybe our kids are just little lol.
To say I was relieved would be an understatement. I was excited, elated, pleased, satisfied...all things good :) We left with no mention of need for a next appointment (except the ears follow up).
I am eternally grateful!
Friday morning, we headed to the pediatrician (Dr. W) to follow-up regarding Josiah's ears (he was found to have fluid in his ears on Thursday). The two year old was also due for an appointment, so we killed two birds with one stone.
Josiah was weighed upon arrival (the norm, at this point). He weighed in at 13 lbs 2 oz. The RN was pleased. I remained quietly anxious, as weight has been a struggle forever! When the Dr. W. came in, he asked about Josiah's weight. I cautiously answered. The pediatrician was HAPPY! I mean genuinely happy! He kept repeating, "I just can't get over Josiah's weight." "He looks amazing!" "He's doing great!" Dr. W. checked Josiah's ears - the fluid is minimal. There's nothing you can do for fluid in the ears, at this stage. So, we will check in with Dr. W. just before the next audiology appointment in Boston.
I joked with Dr. W. about how Josiah falls in the 10% percentile for weight and my 2 yr old falls in the 9% percentile for his weight. Dr. W. replied (regarding the 2 yr old), "He did. Now he falls in the 5th." I laughed. It goes to show that maybe our kids are just little lol.
To say I was relieved would be an understatement. I was excited, elated, pleased, satisfied...all things good :) We left with no mention of need for a next appointment (except the ears follow up).
I am eternally grateful!
Labels:
audiology,
down syndrome,
DS,
ears,
pediatrician,
T21,
Trisomy 21,
weight
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