It's hard to believe what a difference a week makes.
One week ago, right now, we were sitting in a small conference room at Children's Hospital, speaking to our son's surgeon. Josiah had been in the operating room since 8am. The surgeon was about to go into the room to perform open-heart surgery on our little man. The surgery was over at 11:40am and the surgeon came out to discuss the successful operation. Josiah spent two days in ICU, then two days in the cardiac unit. We came home on Sunday.
Josiah is stronger than ever. He is feeding and sleeping well. He continues to show some signs of discomfort which is readily eased by Tylenol.
His EI worker comes out today to work with him. Tomorrow, we are off to Children's for his follow-up sedated echo cardiogram. Next week, we have a follow-up at the pediatrician's office.
I am thankful for this past week and in awe of my son's strength and determination.
Josiah truly is my little hero.
Showing posts with label home. Show all posts
Showing posts with label home. Show all posts
Wednesday, February 1, 2012
Monday, January 30, 2012
1st Morning at Home
We left the hospital at about 5pm, yesterday. Josiah seemed to know he was going home. As he was wheeled out in his stroller, he was fascinated looking around. In his car seat, he fell asleep quickly and slept until we reached home.
Jesse (the oldest) was watching out the window when we arrived home. We were met by both boys as we came up our staircase. The boys were happy to see Mama. They were happy to see their baby brother. I showed Jesse Josiah's 'zipper' (aka scar, as Daddy calls it).
Josiah ate well and fell asleep around 9pm. He proved happy to be home; he slept until 6am.
Josiah's voice seems stronger than ever. He is eating well; he even burps after feeds (something he never did before). He looks great.
We have to schedule another sedated echo cardiogram for later in the week, just to be sure the surgery 'stuck'. We have every reason to believe that it did :) In a week or so, we fill follow-up with the pediatrician. It was fun reading Josiah's discharge papers. They suggest a child who used to have heart disease (past tense). They suggest a child lacking a heart murmur (what a great thing!). Josiah's labs were perfect, all numbers falling within normal limits. They suggest a child with a history of failure to thrive (which we do not anticipate to be a continued problem). They suggest a child who's broken heart was made whole. What a miracle <3.
I had fun playing with the other boys last night. They were both pleased to have Mama sing and read to them before bed. Our night-time routine was back; normalcy had been returned.
The week continues as normal. James's EI worker will come to play with him this morning (something he greatly enjoys). Jesse's back to preschool (and pleased about it). We will take the younger boys to playgroup later in the week.
It's nice to be home. Everything just feels right :)
Jesse (the oldest) was watching out the window when we arrived home. We were met by both boys as we came up our staircase. The boys were happy to see Mama. They were happy to see their baby brother. I showed Jesse Josiah's 'zipper' (aka scar, as Daddy calls it).
Josiah ate well and fell asleep around 9pm. He proved happy to be home; he slept until 6am.
Josiah's voice seems stronger than ever. He is eating well; he even burps after feeds (something he never did before). He looks great.
We have to schedule another sedated echo cardiogram for later in the week, just to be sure the surgery 'stuck'. We have every reason to believe that it did :) In a week or so, we fill follow-up with the pediatrician. It was fun reading Josiah's discharge papers. They suggest a child who used to have heart disease (past tense). They suggest a child lacking a heart murmur (what a great thing!). Josiah's labs were perfect, all numbers falling within normal limits. They suggest a child with a history of failure to thrive (which we do not anticipate to be a continued problem). They suggest a child who's broken heart was made whole. What a miracle <3.
I had fun playing with the other boys last night. They were both pleased to have Mama sing and read to them before bed. Our night-time routine was back; normalcy had been returned.
The week continues as normal. James's EI worker will come to play with him this morning (something he greatly enjoys). Jesse's back to preschool (and pleased about it). We will take the younger boys to playgroup later in the week.
It's nice to be home. Everything just feels right :)
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