It's hard to believe what a difference a week makes.
One week ago, right now, we were sitting in a small conference room at Children's Hospital, speaking to our son's surgeon. Josiah had been in the operating room since 8am. The surgeon was about to go into the room to perform open-heart surgery on our little man. The surgery was over at 11:40am and the surgeon came out to discuss the successful operation. Josiah spent two days in ICU, then two days in the cardiac unit. We came home on Sunday.
Josiah is stronger than ever. He is feeding and sleeping well. He continues to show some signs of discomfort which is readily eased by Tylenol.
His EI worker comes out today to work with him. Tomorrow, we are off to Children's for his follow-up sedated echo cardiogram. Next week, we have a follow-up at the pediatrician's office.
I am thankful for this past week and in awe of my son's strength and determination.
Josiah truly is my little hero.
Welcome. I was inspired to write this blog while pregnant with my son, Josiah. At 18 weeks gestation, Josiah was diagnosed with Down Syndrome. He had open heart surgery at 3 months and has had RSV twice. He is now 21 months old. He and his two older brothers amaze us everyday. Josiah was not a mistake, nor is he a regret. He is a miracle and the light of our lives. We share with you this beautiful life we have been blessed with.
Wednesday, February 1, 2012
What a Difference a Week Makes
Labels:
cardiac,
Children's Hospital,
down syndrome,
DS,
EI,
hero,
home,
icu,
OHS,
open heart surgery,
pediatrician,
sedated echo,
Trisomy 21
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment