It's hard to believe what a difference a week makes.
One week ago, right now, we were sitting in a small conference room at Children's Hospital, speaking to our son's surgeon. Josiah had been in the operating room since 8am. The surgeon was about to go into the room to perform open-heart surgery on our little man. The surgery was over at 11:40am and the surgeon came out to discuss the successful operation. Josiah spent two days in ICU, then two days in the cardiac unit. We came home on Sunday.
Josiah is stronger than ever. He is feeding and sleeping well. He continues to show some signs of discomfort which is readily eased by Tylenol.
His EI worker comes out today to work with him. Tomorrow, we are off to Children's for his follow-up sedated echo cardiogram. Next week, we have a follow-up at the pediatrician's office.
I am thankful for this past week and in awe of my son's strength and determination.
Josiah truly is my little hero.
Showing posts with label cardiac. Show all posts
Showing posts with label cardiac. Show all posts
Wednesday, February 1, 2012
Friday, January 27, 2012
48 Hours Post Surgery
Josiah's progress continues to be remarkable :)
Josiah slept until almost 9am. Upon waking up, his central line was removed, he got a chest x-ray, and nursed again. He is such an amazing little man. The chest x-ray results were wonderful.....everything looks great! He was quickly transferred out of ICU and into the regular cardiac unit.
The surgeon (Dr. E) stopped by and marveled at how well Josiah is doing. He would like Josiah to have another sedated echo cardiogram to confirm that everything is well (which they believe to be true). The nurse practitioner scheduled one for Monday morning, but the surgeon is saying that we will likely be discharged home before Monday a.m. - OMG, what great news!!!! That will simply require a trip back later next week for the echo (as an outpatient). I couldn't be more thrilled.
The cardiologist (Dr. P) stopped by and, also, marveled at how well Josiah is doing. He, too, suggested we should be discharged home over the weekend. We talked about the surgery success. As we had already been told, Josiah's VSD was larger than expected. He also had 5-6 ASD's. All holes were successfully repaired. Josiah also had a leaky valve, which we hadn't been told (it matters not, really). That, too, was repaired successfully. The cardiologist listened to Josiah's heart and chuckled stating, "He sounds great; you would never know that he used to have heart disease." Those are words a mother loves to hear :)
Josiah's is just now getting a Synagis shot. When I was first told that he was going to get one, I questioned it as Josiah had his first Synagis shot last week and is not due again until mid-February. Then I learned something new. Synagis is wiped out with bypass. Therefore, he hasn't had any in his system since Wednesday. Who knew??? LOL. We'll update the Synagis schedule with the pedi, and he will get his last two doses there. The cardiologist said it isn't necessary as "Josiah is no longer a high-risk baby." (Again, great words to hear). But, since he just had surgery, the cardiologist agreed to smart to follow-through with the next two doses to cover the 6-8 weeks post-op.
Carl stayed home with the older boys today (ages 2 & 5). They were picked up from my parents house last night. I think the boys were happy to be home because neither of them got out of bed until 1pm today LOL!!! I miss the boys. I miss Carl. I miss my sister (who also lives with us). I'm looking forward to bringing Josiah home. I miss home <3
It's time to feed Josiah. Then it's time to feed Mama :)
More updates to come <3
Josiah slept until almost 9am. Upon waking up, his central line was removed, he got a chest x-ray, and nursed again. He is such an amazing little man. The chest x-ray results were wonderful.....everything looks great! He was quickly transferred out of ICU and into the regular cardiac unit.
The surgeon (Dr. E) stopped by and marveled at how well Josiah is doing. He would like Josiah to have another sedated echo cardiogram to confirm that everything is well (which they believe to be true). The nurse practitioner scheduled one for Monday morning, but the surgeon is saying that we will likely be discharged home before Monday a.m. - OMG, what great news!!!! That will simply require a trip back later next week for the echo (as an outpatient). I couldn't be more thrilled.
The cardiologist (Dr. P) stopped by and, also, marveled at how well Josiah is doing. He, too, suggested we should be discharged home over the weekend. We talked about the surgery success. As we had already been told, Josiah's VSD was larger than expected. He also had 5-6 ASD's. All holes were successfully repaired. Josiah also had a leaky valve, which we hadn't been told (it matters not, really). That, too, was repaired successfully. The cardiologist listened to Josiah's heart and chuckled stating, "He sounds great; you would never know that he used to have heart disease." Those are words a mother loves to hear :)
Josiah's is just now getting a Synagis shot. When I was first told that he was going to get one, I questioned it as Josiah had his first Synagis shot last week and is not due again until mid-February. Then I learned something new. Synagis is wiped out with bypass. Therefore, he hasn't had any in his system since Wednesday. Who knew??? LOL. We'll update the Synagis schedule with the pedi, and he will get his last two doses there. The cardiologist said it isn't necessary as "Josiah is no longer a high-risk baby." (Again, great words to hear). But, since he just had surgery, the cardiologist agreed to smart to follow-through with the next two doses to cover the 6-8 weeks post-op.
Carl stayed home with the older boys today (ages 2 & 5). They were picked up from my parents house last night. I think the boys were happy to be home because neither of them got out of bed until 1pm today LOL!!! I miss the boys. I miss Carl. I miss my sister (who also lives with us). I'm looking forward to bringing Josiah home. I miss home <3
It's time to feed Josiah. Then it's time to feed Mama :)
More updates to come <3
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