Wednesday night, Josiah went to bed at 6:30. The 'big' boys were in bed at 7. We had succeeded in getting them to bed early. C and I were in bed by 10pm. We knew morning would come quickly. We were right.
The alarm went off at 3am. I continued to hit 'snooze' until 3:36am. I couldn't delay this any longer. I was up, showered, and dressed by 4am. At 4:10, we were waking the three children up. Our goal was to leave at 5am. After feeding and dressing the kids, we were only a few minutes late. At 5:17, we were out the door, filling up the gas tank, and headed for the highway. Josiah had his Down syndrome clinic on Thursday. If we don't leave early, traffic can be a nightmare.
At 6:30am, we had made the 30mile drive. We were parked in the garage, one block from Children's. We made our way up to the hospital. The morning had gone smoothly, so far. The big boys played on the musical stairs, then we were off to have breakfast. After eating, we decided to roam around a bit. We checked out a few of the important places C and the boys may want to spend time, while waiting for Josiah and I.
By 7:45am, we were checked in at the DS clinic. We were about 45 minutes early. The first of many checks started. First, height and weight. Josiah weighed in at 27 lbs. He is 33.5" long. Ha!!!!
By 8:30, Josiah and I headed in to meet with the Director of the DS clinic. C and big boys were off to the playground. Josiah and I sat with the MD until almost 10am. Growth was charted. Once upon a time, Josiah's plotted numbers wouldn't land on the growth target. Once upon a time, weight was a huge concern. Once upon a time, they said he was failure to thrive. Once upon a time.... This day, however, was a different story. On the 'normal' growth chart (which Josiah used fall in the 0 percentile), he proved them all wrong. For weight, 56%. Height, 29%. Height to weight ratio, 79%. On the DS chart, he falls in the 90%. That's right, 90%!!!!
Medical history was reviewed. His thyroid from January looked good. He doesn't need to be rechecked until January. Josiah will need a sleep study by the age of 4 as sleep apnea is common in children with DS. Coincidentally, Josiah's tonsils are large - so this is something they will monitor. If all stays the same, Josiah will get a sleep study near his fourth birthday. No other concerns at this time. Yay!!!
We then met with the physical therapist (PT). That was Josiah's favorite part of the morning. He was able to get on the floor and play on the huge mat. He had a blast!!! The PT was impressed with what Josiah is doing. Josiah will continue to get PT through early intervention (EI). Hopefully, walking will be in his near future :)
The meeting with nutrition went well. Josiah is eating well and tolerating a variety of textures and flavors. We are fortunate. Josiah is doing great! The meeting with occupational therapy (OT) went equally as well. Josiah is making huge strides. The OT was thrilled with Josiah's progress thus far.
Upcoming appointments/follow ups were reviewed. During the Fall/Early winter months, we'll revisit orthopedics, ENT, and vision. Dental will continue to be followed locally. Flu shots are this weekend. I was given the option of adding audiology to the day's events. I opted to follow up locally. I will try to get that scheduled for next week. That is that!
It was 12:30 and we had had a great day at clinic. It was fun seeing friends old and new. We will see them all again in the Spring.
We left knowing how lucky we are. We have three beautiful, happy, boys. We revel in the beautiful moments. We take nothing for granted. Life is good!!!
Showing posts with label physical therapy. Show all posts
Showing posts with label physical therapy. Show all posts
Friday, September 20, 2013
Thursday, October 11, 2012
31 for 21 Blog Challenge: DAY ELEVEN: PT Strides
Josiah had physical therapy this morning. As usual (for a Thursday), we were up at 6:30, changed, dressed, fed, and ready at 8. D arrived at 7:59 - as prompt as usual. She was immediately met with smiles, coos, and giggles.
Josiah has been doing well. Despite my best intention of allowing him to utilize his new vest, I must say it fell by the wayside. The vest still sat where I had laid it last week. The hip helpers remained there too. After my confession, and brief apology, D and Josiah were on to their session.
The vest was on little man, almost immediately. My goodness, it does make a difference!!! Josiah enjoyed sitting today. The support has become less and less. It is now minimal. At times, Josiah was sitting without any support. Of course, D was ready to catch him when he tipped over (which inevitably happens every time).
We brought the music block out today. It's quite tall which proved helpful. While sitting, it forced Josiah to bring his arms up quite high to reach the top. Then, D tried standing. With a bit of a jackknife shape, Josiah stood hanging on to the block. How dapper he looked sporting his vest. He demonstrating his weight-bearing abilities like a pro. He even maneuvered toys while doing so.
He was happy to show D how he gets into the 'all four' position and rocks (often using his head for stabilization). I don't know if he realizes how close to crawling he actually is....
All the while, he is babbling up a storm. Just in the past three days, he's added 'lala' and 'dada' to his verbal repertoire. He talks in conversation. He talks to get attention. He talks to be funny. (and, yes, he knows exactly the context every time).
I remain in awe at this little boy. I dream the world for him. Every day, he proves he can attain it :)
Thank you, God, for my piece of Heaven on earth.
Josiah has been doing well. Despite my best intention of allowing him to utilize his new vest, I must say it fell by the wayside. The vest still sat where I had laid it last week. The hip helpers remained there too. After my confession, and brief apology, D and Josiah were on to their session.
The vest was on little man, almost immediately. My goodness, it does make a difference!!! Josiah enjoyed sitting today. The support has become less and less. It is now minimal. At times, Josiah was sitting without any support. Of course, D was ready to catch him when he tipped over (which inevitably happens every time).
We brought the music block out today. It's quite tall which proved helpful. While sitting, it forced Josiah to bring his arms up quite high to reach the top. Then, D tried standing. With a bit of a jackknife shape, Josiah stood hanging on to the block. How dapper he looked sporting his vest. He demonstrating his weight-bearing abilities like a pro. He even maneuvered toys while doing so.
He was happy to show D how he gets into the 'all four' position and rocks (often using his head for stabilization). I don't know if he realizes how close to crawling he actually is....
All the while, he is babbling up a storm. Just in the past three days, he's added 'lala' and 'dada' to his verbal repertoire. He talks in conversation. He talks to get attention. He talks to be funny. (and, yes, he knows exactly the context every time).
I remain in awe at this little boy. I dream the world for him. Every day, he proves he can attain it :)
Thank you, God, for my piece of Heaven on earth.
"If you can dream it, you can do it."
- Walt Disney
Thursday, October 4, 2012
31 for 21 Blog Challenge: DAY FOUR: Do you See me Mom? I'm Sitting!
Josiah had physical therapy this morning, as he does every week. We were up by 6:30, changed, fed, and waiting for D by 8am. D was greeted by Josiah's usual grins and giggles.
D came prepared today. She brought hip helpers and a cute little vest. We had discussed hip helpers before and the jury remained out as to whether or not they would be helpful. Hip helpers are similar to biking shorts - made of spandex thus very tight. Unlike bike shorts, the inner seam of the hip helpers are sewn together. They are used to help an baby (especially with low tone) learn to keep their legs straight (as opposed to 'frog legs'). D has been impressed that Josiah doesn't tend to utilize 'frog legs' and does a fairly good job at keeping his legs straight. It has been her contention that Josiah needed more trunk control.
Hence, the benik vest. The benik vest (which I had never heard of until today) is designed to provide 'stability and comfort.' The theory is that if Josiah can learn what it feels like to do certain motions without worrying so much about his body, his body will do more. When he's not wearing the vest, his body will try to replicate the motions and work the necessary muscles to accomplish the goals.
Josiah has been doing a great job sitting (with support from D). Over the weeks and months, we have seen Josiah require less and less support. Today, we witnessed something new. Josiah sat all by himself. It wasn't for long but it was numerous times. He even managed to give me a couple of great smirks as if to say, "Do you see me, Mom? I'm sitting! Pretty cool, huh?"
It's funny how proud two parents can be of a little boy sitting. There he was, sitting. There we were, just as proud as punch!!!
God, I love this little boy!!!
D came prepared today. She brought hip helpers and a cute little vest. We had discussed hip helpers before and the jury remained out as to whether or not they would be helpful. Hip helpers are similar to biking shorts - made of spandex thus very tight. Unlike bike shorts, the inner seam of the hip helpers are sewn together. They are used to help an baby (especially with low tone) learn to keep their legs straight (as opposed to 'frog legs'). D has been impressed that Josiah doesn't tend to utilize 'frog legs' and does a fairly good job at keeping his legs straight. It has been her contention that Josiah needed more trunk control.
Hence, the benik vest. The benik vest (which I had never heard of until today) is designed to provide 'stability and comfort.' The theory is that if Josiah can learn what it feels like to do certain motions without worrying so much about his body, his body will do more. When he's not wearing the vest, his body will try to replicate the motions and work the necessary muscles to accomplish the goals.
Josiah has been doing a great job sitting (with support from D). Over the weeks and months, we have seen Josiah require less and less support. Today, we witnessed something new. Josiah sat all by himself. It wasn't for long but it was numerous times. He even managed to give me a couple of great smirks as if to say, "Do you see me, Mom? I'm sitting! Pretty cool, huh?"
It's funny how proud two parents can be of a little boy sitting. There he was, sitting. There we were, just as proud as punch!!!
God, I love this little boy!!!
"Even miracles take a little time"
- unknown author
Saturday, September 29, 2012
Thankful For a Rainy Day
We have survived 5 days of school, 4 colds, 4 EI visits, 3 trips to the pediatrician, 3 flu shots, 2 on 'cough medicine' (ie honey), 1 fever, 1 ear infection, 1 preschool assessment, and 1 antibiotic. This is just since Sunday! Good Grief! We need this weekend to recover.
We had planned an outing for today, but given the illnesses of the week (mixed with today's rain) - we are staying home today. I need to get caught up on some much needed cleaning. Tomorrow is our first Buddy Walk - I am very excited! I'm just hoping the rain cooperates with us.
Monday, I cancelled Josiah's EI visit with K. I think that might be the first appointment I ever cancelled. That was the day we took Josiah to the MD due to a fever. On Tuesday, we were back at the pediatrician's office for scheduled flu shots for all three boys. They were troopers!
Wednesday, Josiah met with C (occupational therapy). He did a great job, as usual. Thursday, he met with D (physical therapy). This wasn't an 'all-star' week (like last week), but he did very well none-the-less. Josiah continues to prove increasing strength, stamina, and determination. He is sitting (with support), and can stand (with even more support). He squirms all over the place when on the floor - I suspect crawling isn't too far away.
It's been a busy, yet non-exciting, week. It was exhausting, actually lol.
Stealing moments for myself seem difficult, at best. Even now as I write, I struggle to get the thoughts in my brain transformed into words on paper. The 2 year old stands at the top of the stairs, steadfastly, screaming "MOMMY!" How 'Mommy' needs a break!
Sometimes it's best to give in. I shall cut this short and attend to my family. I will attempt to find some quiet time later to share more with you.
Happy rainy Saturday everyone!
We had planned an outing for today, but given the illnesses of the week (mixed with today's rain) - we are staying home today. I need to get caught up on some much needed cleaning. Tomorrow is our first Buddy Walk - I am very excited! I'm just hoping the rain cooperates with us.
Monday, I cancelled Josiah's EI visit with K. I think that might be the first appointment I ever cancelled. That was the day we took Josiah to the MD due to a fever. On Tuesday, we were back at the pediatrician's office for scheduled flu shots for all three boys. They were troopers!
Wednesday, Josiah met with C (occupational therapy). He did a great job, as usual. Thursday, he met with D (physical therapy). This wasn't an 'all-star' week (like last week), but he did very well none-the-less. Josiah continues to prove increasing strength, stamina, and determination. He is sitting (with support), and can stand (with even more support). He squirms all over the place when on the floor - I suspect crawling isn't too far away.
It's been a busy, yet non-exciting, week. It was exhausting, actually lol.
Stealing moments for myself seem difficult, at best. Even now as I write, I struggle to get the thoughts in my brain transformed into words on paper. The 2 year old stands at the top of the stairs, steadfastly, screaming "MOMMY!" How 'Mommy' needs a break!
Sometimes it's best to give in. I shall cut this short and attend to my family. I will attempt to find some quiet time later to share more with you.
Happy rainy Saturday everyone!
Sunday, September 23, 2012
Falling Back into the Swing of Things
Now that the kids are getting older, I realize how busy life can get in September.
We celebrated a 'first' anniversary - remembering the life of my oldest brother. He made choices we didn't understand. In September of 2011 he died, on the streets, at the age of 50. Although I don't miss the nonsense, I do miss him. I miss my brother.
Our oldest began Kindergarten. Here, the children attend full-days. He takes the bus to and from school every day. He leaves at 7:40am and arrives home at 3:10pm. He is doing well. He is already recognizing more letters and is proudly demonstrating math skills he has learned.
Our middle boy began early preschool. I wish the transition to school had been as easy on him. I don't know if it's been harder on him, or us (watching him struggle). We're in touch with the school, the administration, and the teachers. He's already turned a corner. We're waiting patiently to see if things improve further; we hope they do. (Early Intervention) EI continues to work with him on his speech. One recent, and major, accomplishment has been his willingness to say goodbye to his binky (except at night). This, in itself, has led to an improvement in speech. We're hoping for major strides in the next three months because in December he will age-out of EI.
Josiah continues to amaze us! We finally had his 'six' month pics taken. He was 10 months at the time, but who's counting.
Josiah continues to receive two EI visits per week. One from K (his child care specialist); the other from D (his physical specialist). Every other week, C arrives for OT (occupational therapy). In the coming months, he will begin receiving speech therapy. The progress he is making is astonishing (pics below).
Our first Buddy Walk is next week. We are tremendously excited about it. I'll be sure to tell you all about it. We can't wait!!!!
Next month is sure to be a great month. October!!!! It's Down Syndrome Awareness Month. Josiah will also celebrate his first birthday. Amazing stuff!!!
Finally, for those of you who enjoy pics. Here are some recent ones (mostly taken during Josiah's EI sessions):
Here, he demonstrates his ability to proudly hold his head high. His arm extension is wonderful! Belly time has become fun for Josiah. Catching him on his belly is actually rare these days as he loves to roll now. Gates have become his best friend (as they constantly save him from getting into forbidden areas). It's no longer uncommon for us to turn our back, only to find him on the other side of the room mere moments later.
The task of sitting is an obstacle anxious to be overcome. Josiah is starting to understand its importance....if only the balance would cooperate. With a toy carefully propped, he does quite well. It's only a matter of time before he's sitting independently :)
"Look, Mom! Only one hand!" It's a good thing that K is holding on. Josiah doesn't realize that his ability to fall over is greater than his ability to sit lol :)
This isn't the best pic of Josiah's face but it clearly shows that he is now tolerating weight-bearing on his legs/feet. This is a huge step!!! It's very exciting.
Josiah is learning what it feels like to bear weight on his knees. This kid is such a trooper. He is manhandled frequently and tolerates it like a champ :)
This was taken yesterday as our family enjoyed a much needed-day-to-ourselves outing. Fun was had by all.
We celebrated a 'first' anniversary - remembering the life of my oldest brother. He made choices we didn't understand. In September of 2011 he died, on the streets, at the age of 50. Although I don't miss the nonsense, I do miss him. I miss my brother.
Our oldest began Kindergarten. Here, the children attend full-days. He takes the bus to and from school every day. He leaves at 7:40am and arrives home at 3:10pm. He is doing well. He is already recognizing more letters and is proudly demonstrating math skills he has learned.
Our middle boy began early preschool. I wish the transition to school had been as easy on him. I don't know if it's been harder on him, or us (watching him struggle). We're in touch with the school, the administration, and the teachers. He's already turned a corner. We're waiting patiently to see if things improve further; we hope they do. (Early Intervention) EI continues to work with him on his speech. One recent, and major, accomplishment has been his willingness to say goodbye to his binky (except at night). This, in itself, has led to an improvement in speech. We're hoping for major strides in the next three months because in December he will age-out of EI.
Josiah continues to amaze us! We finally had his 'six' month pics taken. He was 10 months at the time, but who's counting.
Josiah continues to receive two EI visits per week. One from K (his child care specialist); the other from D (his physical specialist). Every other week, C arrives for OT (occupational therapy). In the coming months, he will begin receiving speech therapy. The progress he is making is astonishing (pics below).
Our first Buddy Walk is next week. We are tremendously excited about it. I'll be sure to tell you all about it. We can't wait!!!!
Next month is sure to be a great month. October!!!! It's Down Syndrome Awareness Month. Josiah will also celebrate his first birthday. Amazing stuff!!!
Finally, for those of you who enjoy pics. Here are some recent ones (mostly taken during Josiah's EI sessions):
Updates coming soon: Weight and MD stuff.....
October's goal: Daily blogging..... :)
Friday, May 25, 2012
EI Assessment 052412
Yesterday was Josiah's much-anticipated 6-month EI (early intervention) assessment/review. K (childcare specialist) and I have been excited about today, expecting to see great improvement. After all, we thought, he had so many obstacles in his first few months. He had multiple VSD's and ASD's (that we didn't know about, at the time). In Dec, he had RSV (a blessing after all - without it, they wouldn't have found the holes in his heart so quickly). At the end of January, he had open heart surgery; Then, he had a six week recovery period. So, really, he's only been ABLE to make improvements since early-March.
Josiah was up early, fed, changed, and ready to greet his 'girlfriends' upon their arrival at 8am :). The mat was ready to go; Josiah was ready to play. This was an unusual session and Josiah sensed that. I think he was a bit disappointed, at first. D (physical therapist) always greets Josiah with songs....that was not true yesterday. Josiah missed it, I could tell lol.
Josiah was engaging with both K & D. K performed most of the 'tests', while D observed (and recorded) the results. Josiah did well at rolling over, grasping toys, even reaching for toys (at times). He wasn't impressed with tasks requiring him to tap, look at items, etc. He was very vocal with his 'girls'. He's a social little guy :)
Josiah did very well yesterday! The 'results' indicate the "functional" age of the child (at what age the child is currently functioning at). Here is the score summary (when I get the detailed report, I will post the specifics):
We are thrilled that he has made such great improvements in such a short period of time. This little guy is amazing!!!!
Josiah was up early, fed, changed, and ready to greet his 'girlfriends' upon their arrival at 8am :). The mat was ready to go; Josiah was ready to play. This was an unusual session and Josiah sensed that. I think he was a bit disappointed, at first. D (physical therapist) always greets Josiah with songs....that was not true yesterday. Josiah missed it, I could tell lol.
Josiah was engaging with both K & D. K performed most of the 'tests', while D observed (and recorded) the results. Josiah did well at rolling over, grasping toys, even reaching for toys (at times). He wasn't impressed with tasks requiring him to tap, look at items, etc. He was very vocal with his 'girls'. He's a social little guy :)
Josiah did very well yesterday! The 'results' indicate the "functional" age of the child (at what age the child is currently functioning at). Here is the score summary (when I get the detailed report, I will post the specifics):
- Gross Motor: 4 months (not surprising - this involves trunk, head, neck control, etc. I'm tickled that he didn't score lower :)
- Fine Motor: 5 months
- Social/Emotional: 5 months
- Receptive Language/Communication: 5 months
- Self Care/Adaptive: 5 months
- Expressive Language/Communication: 6 months
- Cognition: 6 months
We are thrilled that he has made such great improvements in such a short period of time. This little guy is amazing!!!!
Friday, April 27, 2012
End of a Long Week
I'm so glad this week is over. I was glad to have our routine back....but the week was not ideal.
Jesse had a friend over on Tuesday and we all went to playgroup - it was great! Unfortunately, after the friend left, Jesse didn't feel well. He missed school for the rest of the week. His symptoms consisted only of vomiting and diarrhea....once or twice daily; no other symptoms. We've had to work around him being home, and not feeling well. We called the pediatrician today but they suggested we continue to do what we have been doing (keeping him hydrated and feeding him the "brat" diet). My parents are Godsends - they have taken Jesse and James for the night.
James, meanwhile, had his 2nd playgroup on Wednesday & had a blast! He enjoyed his outing with Daddy :)
Yesterday, D & K (EI) came out to work with Josiah. As usual, Josiah was out to impress. He tolerated handling well (he does love being handled by his girlfriends - hahaha) and was cooperative with side-lying. He laid on his belly for an extended time, lifting his head with great determination! D & K are very pleased with his progress over the last couple of weeks.
Josiah's cereal eating continues to go well. He enjoys his rice cereal once/daily. I've called C to update her; I know she is ready to jump in, when needed, for and/all feeding issues.
Today, I was able to do some much-needed errands. The older boys are at my parents house for the night. Carl & I are going to be able to enjoy some 'alone' time (with Josiah, of course).
Right now, the house is quiet. The baby is sleeping. Life is good.
Happy Friday, everyone!!!
Jesse had a friend over on Tuesday and we all went to playgroup - it was great! Unfortunately, after the friend left, Jesse didn't feel well. He missed school for the rest of the week. His symptoms consisted only of vomiting and diarrhea....once or twice daily; no other symptoms. We've had to work around him being home, and not feeling well. We called the pediatrician today but they suggested we continue to do what we have been doing (keeping him hydrated and feeding him the "brat" diet). My parents are Godsends - they have taken Jesse and James for the night.
James, meanwhile, had his 2nd playgroup on Wednesday & had a blast! He enjoyed his outing with Daddy :)
Yesterday, D & K (EI) came out to work with Josiah. As usual, Josiah was out to impress. He tolerated handling well (he does love being handled by his girlfriends - hahaha) and was cooperative with side-lying. He laid on his belly for an extended time, lifting his head with great determination! D & K are very pleased with his progress over the last couple of weeks.
Josiah's cereal eating continues to go well. He enjoys his rice cereal once/daily. I've called C to update her; I know she is ready to jump in, when needed, for and/all feeding issues.
Today, I was able to do some much-needed errands. The older boys are at my parents house for the night. Carl & I are going to be able to enjoy some 'alone' time (with Josiah, of course).
Right now, the house is quiet. The baby is sleeping. Life is good.
Happy Friday, everyone!!!
Wednesday, March 21, 2012
A Better Week
I have finally pulled myself out of the 'bummed out' mode, I had slipped into. I had started to pull myself out of that hole. Then, today, I talked to KF (lactation specialist/friend) - it took no time at all to be feeling great again. I always feel better after talking to her :) It was all over the need to supplement feedings with bottles. It seems silly to me but emotions cannot always be explained :)
Josiah has been doing really well. I continue to breastfeed, on-demand. He generally takes 1-2 bottles per day, ranging from 2-4 ounces each. I jumped on the bathroom scale the other day (alone), then again holding him. The difference calculated at 10.6 lbs. So, I'm feeling positive that this week's weight check will produce positive results.
It's been a relatively quiet week. Jesse has been going to school, as usual. He has a field trip tomorrow that he excited about. James has no playgroup this week so it's been an at-home kind of a week. Josiah didn't have EI on Monday; Instead, K & D both come tomorrow. I'm excited for D to see him. She's the physical therapist & I think she will be pleased with his progress. Now, if he could just hold his own head up lol.
Josiah's synagis shot is scheduled for Friday. That's when he will be weighed again; I remain optimistic about those results. Meanwhile, he is alert and playful. He enjoys grabbing at, and grasping, his favorite toys. He continues to roll over from back to belly (oftentimes getting stuck there). He looks less like an infant now. If my eyes do not deceive me, I swear (at times) he looks like he is actually getting a little bit of a belly. These are all good signs that my little heart hero is doing well.
The next two days are sure to be good ones.
Josiah has been doing really well. I continue to breastfeed, on-demand. He generally takes 1-2 bottles per day, ranging from 2-4 ounces each. I jumped on the bathroom scale the other day (alone), then again holding him. The difference calculated at 10.6 lbs. So, I'm feeling positive that this week's weight check will produce positive results.
It's been a relatively quiet week. Jesse has been going to school, as usual. He has a field trip tomorrow that he excited about. James has no playgroup this week so it's been an at-home kind of a week. Josiah didn't have EI on Monday; Instead, K & D both come tomorrow. I'm excited for D to see him. She's the physical therapist & I think she will be pleased with his progress. Now, if he could just hold his own head up lol.
Josiah's synagis shot is scheduled for Friday. That's when he will be weighed again; I remain optimistic about those results. Meanwhile, he is alert and playful. He enjoys grabbing at, and grasping, his favorite toys. He continues to roll over from back to belly (oftentimes getting stuck there). He looks less like an infant now. If my eyes do not deceive me, I swear (at times) he looks like he is actually getting a little bit of a belly. These are all good signs that my little heart hero is doing well.
The next two days are sure to be good ones.
Sunday, March 18, 2012
A Much Needed Break, Playdate, and 5 Months Old
A week-long hiatus from writing is unusual for me. I'm back :)
Last weekend, the older boys spent a night at my parents house. It gave Carl and I a much needed break. This time, unlike others, we had predetermined to "do nothing." So often, when the older boys are away, we set a goal of accomplishing tasks....usually too many to successfully accomplish within the time frame given. It always leads to disappointment when the boys return with thoughts of, "We should have gotten more done," etc. Our goal last weekend was void of all tasks. It was impossible to disappoint. We spent time together, watched tv, and just relaxed. It was wonderful. Saturday night, the older boys returned home. They had a wonderful time with their grandparents.
On Sunday, Jesse had his friend M over. It was his first 'real' play date. It was the first time having a friend (of his choice) come over to play. We picked up M around 12noon and drove them home. They had lunch, and spent the next five hours playing. They enjoyed playing outside & in Jesse's room. Carl loved watching them play. At 5pm, we drove M home. The first play date was a smashing success! Another milestone accomplished.
Josiah spent the weekend determined to prove how well he could roll over. The proof was always in finding him on his tummy.....as he seemed equally determined to roll over when we were not in the room. He's a funny little boy. The days of leaving him on the couch 'just for a minute' have come to a crashing halt. His new trick makes him a safety hazard (to himself) now. He is so proud of his new ability, as are we.
On Monday, Josiah turned 5 months old. It's so hard to believe the miracle that IS Josiah. K came out in the morning to work with James. As usual, they had a wonderful time working together. She returned in the early afternoon to work with Josiah. This was the first time that Carl and I were not home to participate in their session; Instead, my Mom was here. K had heard that Josiah was rolling onto his tummy and, I know, she wanted to witness the new occurrence. I had joked, "Good luck!"
Apparently, Josiah did not disappoint. Once he had greeted K, she laid him on his mat. He aimed to please; He rolled onto his side. Utilizing momentum, he continued to roll onto his tummy. K was delighted! During the next hour, Josiah repeated his new trick several times for K. While on his tummy, he repeatedly turned his head from side to side. The session was full of delighted adults (and one proud baby). Though I missed the session, I was given a blow-by-blow account of it's success. First, by my Mom; Later, by K (via phone).
D is coming out next week for his physical therapy. Up until now, it's been monthly; Rumor has it, it's soon to become weekly. I'm excited! I think this will be great for Josiah.
In terms of feedings, Josiah is doing well. During the weekend, I continued to breastfeed on demand. Josiah also took a total of 5 bottles, ranging from 1-3 oz each). I'm still bothered by the need for supplementation, but will continue to do whatever is best for him <3.
This amazing journey continues....
Last weekend, the older boys spent a night at my parents house. It gave Carl and I a much needed break. This time, unlike others, we had predetermined to "do nothing." So often, when the older boys are away, we set a goal of accomplishing tasks....usually too many to successfully accomplish within the time frame given. It always leads to disappointment when the boys return with thoughts of, "We should have gotten more done," etc. Our goal last weekend was void of all tasks. It was impossible to disappoint. We spent time together, watched tv, and just relaxed. It was wonderful. Saturday night, the older boys returned home. They had a wonderful time with their grandparents.
On Sunday, Jesse had his friend M over. It was his first 'real' play date. It was the first time having a friend (of his choice) come over to play. We picked up M around 12noon and drove them home. They had lunch, and spent the next five hours playing. They enjoyed playing outside & in Jesse's room. Carl loved watching them play. At 5pm, we drove M home. The first play date was a smashing success! Another milestone accomplished.
Josiah spent the weekend determined to prove how well he could roll over. The proof was always in finding him on his tummy.....as he seemed equally determined to roll over when we were not in the room. He's a funny little boy. The days of leaving him on the couch 'just for a minute' have come to a crashing halt. His new trick makes him a safety hazard (to himself) now. He is so proud of his new ability, as are we.
On Monday, Josiah turned 5 months old. It's so hard to believe the miracle that IS Josiah. K came out in the morning to work with James. As usual, they had a wonderful time working together. She returned in the early afternoon to work with Josiah. This was the first time that Carl and I were not home to participate in their session; Instead, my Mom was here. K had heard that Josiah was rolling onto his tummy and, I know, she wanted to witness the new occurrence. I had joked, "Good luck!"
Apparently, Josiah did not disappoint. Once he had greeted K, she laid him on his mat. He aimed to please; He rolled onto his side. Utilizing momentum, he continued to roll onto his tummy. K was delighted! During the next hour, Josiah repeated his new trick several times for K. While on his tummy, he repeatedly turned his head from side to side. The session was full of delighted adults (and one proud baby). Though I missed the session, I was given a blow-by-blow account of it's success. First, by my Mom; Later, by K (via phone).
D is coming out next week for his physical therapy. Up until now, it's been monthly; Rumor has it, it's soon to become weekly. I'm excited! I think this will be great for Josiah.
In terms of feedings, Josiah is doing well. During the weekend, I continued to breastfeed on demand. Josiah also took a total of 5 bottles, ranging from 1-3 oz each). I'm still bothered by the need for supplementation, but will continue to do whatever is best for him <3.
This amazing journey continues....
Tuesday, December 13, 2011
2-months old
Has it really been 2 months since Josiah was born??? This is an amazing journey we are on. I'm loving every minute of it.
Josiah had his first EI visit and he did very well. He is a social little boy and likes the EI worker. At this point, they simply monitor his movements, etc. He's turning his head in both directions (favoring the right, slightly). He tolerates laying on both sides. He brings his hands up to his mouth. Even on his side, he is able to bring his hands to mid-line and then to his mouth. He is alert and enjoys looking around his environment. He recognizes voices and searches for those he knows. His eyes are big and bright :) No delays evident, as of yet. The EI professional has requested a PT and RN consult. This is not due to any concerns, per se. Rather, they want to assure that a whole team is in place in the event they are needed.
I enjoy facebook very much but am very selective with whom I'm friends with (I have to actually know you, for example lol). Carl & I were recently introduced to a local group of parents. They have a page on FB & we recently joined. What an amazing group of people. There are approximately 130 members. They are all local and they are all raising a child with DS. They have get-togethers once per month & special annual events. We look forward to attending our first get-together & getting to know our new friends.
With the Holidays rapidly approaching, I have not yet made an appt for Josiah's "new baby" visit to Boston Children's DS clinic. We'll likely schedule that for January. His first clinic appt is scheduled for June. At that time, he'll meet with their team of specialists. They will monitor him approx. every 8 months until the age of 18. What an amazing time & place we live in. I thank God everyday that Josiah has such wonderful supports. I know he will truly blossom into an incredible young man, just like his two brothers.
Josiah's older brothers are great. James just turned two & cherishes every moment he is afforded to kiss his baby brother. James will say, "Hi, baby!" We have to keep reminding James that Josiah is not like his Elmo doll but rather a real baby. James would love to fling him on the floor and play with him....hence the constant supervision :) Jesse will be turning 5 in a few weeks.....I don't know where those 5 years went. He's doing very well in preschool & adores his baby brother(s). Jesse knows that Josiah has DS but it matters not. Josiah is his brother - nothing more, nothing less.
Oh yeah, I almost forgot to mention the best thing. Yesterday, Josiah turned 2 months old & he smiled at me. I mean a real ear-to-ear smile. My heart melted! As my friend said, "he turned 2 months old but you got the best present." She's absolutely right!
God knew what he was doing when he sent us Jesse, James, and Josiah. They are wonderful children & we couldn't ask for more. If I had to go back and do it all over again.....I wouldn't change a thing <3
Josiah had his first EI visit and he did very well. He is a social little boy and likes the EI worker. At this point, they simply monitor his movements, etc. He's turning his head in both directions (favoring the right, slightly). He tolerates laying on both sides. He brings his hands up to his mouth. Even on his side, he is able to bring his hands to mid-line and then to his mouth. He is alert and enjoys looking around his environment. He recognizes voices and searches for those he knows. His eyes are big and bright :) No delays evident, as of yet. The EI professional has requested a PT and RN consult. This is not due to any concerns, per se. Rather, they want to assure that a whole team is in place in the event they are needed.
I enjoy facebook very much but am very selective with whom I'm friends with (I have to actually know you, for example lol). Carl & I were recently introduced to a local group of parents. They have a page on FB & we recently joined. What an amazing group of people. There are approximately 130 members. They are all local and they are all raising a child with DS. They have get-togethers once per month & special annual events. We look forward to attending our first get-together & getting to know our new friends.
With the Holidays rapidly approaching, I have not yet made an appt for Josiah's "new baby" visit to Boston Children's DS clinic. We'll likely schedule that for January. His first clinic appt is scheduled for June. At that time, he'll meet with their team of specialists. They will monitor him approx. every 8 months until the age of 18. What an amazing time & place we live in. I thank God everyday that Josiah has such wonderful supports. I know he will truly blossom into an incredible young man, just like his two brothers.
Josiah's older brothers are great. James just turned two & cherishes every moment he is afforded to kiss his baby brother. James will say, "Hi, baby!" We have to keep reminding James that Josiah is not like his Elmo doll but rather a real baby. James would love to fling him on the floor and play with him....hence the constant supervision :) Jesse will be turning 5 in a few weeks.....I don't know where those 5 years went. He's doing very well in preschool & adores his baby brother(s). Jesse knows that Josiah has DS but it matters not. Josiah is his brother - nothing more, nothing less.
Oh yeah, I almost forgot to mention the best thing. Yesterday, Josiah turned 2 months old & he smiled at me. I mean a real ear-to-ear smile. My heart melted! As my friend said, "he turned 2 months old but you got the best present." She's absolutely right!
God knew what he was doing when he sent us Jesse, James, and Josiah. They are wonderful children & we couldn't ask for more. If I had to go back and do it all over again.....I wouldn't change a thing <3
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